This week, February 7 - 14, is National Congenital Heart Defect Awareness week. I have been eagerly anticipating this week for a while now. I feel like I want to stand on top of the highest mountain top and enlighten the rest of the world about CHD's. How can something so prevalent keep invading the lives of families all over the world, yet so few people know about them? How can our government spend billions of dollars on research of other acquired diseases, yet congenital heart defect research is lagging far behind in comparison? How can expectant mothers be screened for diabetes, Down syndrome, etc, but not congenital heart defects?
There is much work to be done. I wish I had a bigger voice. For now, I will blog, go to my Mended Little Hearts meetings, and talk about CHD with anyone who will listen. It is my wish that through research we can find the etiology of congenital heart defects and put to rest the pain and suffering of all the CHD families like mine.
