Did you know that 1 in 100 babies in the U.S. are born with a congenital heart defect? CHD's are the leading cause of infant death, and the #1 birth defect of live infants. The cause of most congenital heart defects are unknown, yet funding for research vastly lags behind childhood cancer and other genetic diseases.

Has your child been diagnosed with l-tga? I would love to talk with you. Please enjoy my blog and email me if you would like to join a network of parents of children with l-tga and other CHD's.




























Sunday, March 27, 2011

Time To Catch Up!

I can't believe it has been a month and a half since I've posted here.  Since then, we have seen our cardiologist twice.  At our last visit on March 8 (which was exactly 12 weeks post-op), Dr. Wright delivered some exciting news...Nicholas' PA Band measurement was in the low 60mmHg range, which is over double of what it had been before!  If it is possible to get excited about more surgeries, then this would be an example of what we would hope for!

With that being said, it goes without saying that we are nervously anticipating another visit to Stanford, which is scheduled for the beginning of May.  We will have another cardiac catheterization and possibly another MRI to accurately measure the strength and pressure inside his heart.  The information that is gathered then will determine if Nicholas needs another PA Banding surgery to further train his left ventricle or if his heart is ready for the big Double Switch operation. 

Nicholas also went in for his 4 year well child check up this month (a little late, obviously!).  He has grown one inch and gained over two pounds since his surgery!  I suspect this has played a part in the PA Band gradient going up so much since the last echo!

Life has been so busy lately, I will try to do better to stay on top of my blog!




Posted by at 1 comment:
Subscribe to: Posts (Atom)