Here we are, back at the children's hospital at Stanford, while our boy is in having his MRI and dual heart cath procedures today. Nicholas has been doing very well, he is really growing and he is very active, even with his heart trying to slow him down. Yesterday we met with part of his cardiac team here at LPCH and they said his LV function looked really good on the echo. They mentioned that the gradient didn't look as high as expected, so hopefully some questions will be answered today during his cath to see what is really going on between his left ventricle and his pulmonary artery. This will determine what the next step is....another banding?....wait to let Nicholas grow, therefore letting the band tighten naturally?....or the big Double Switch???
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| Nicholas with Clarice, getting ready to go in to MRI and heart cath this morning. |
I have such emotions going through my brain right now. I am so scared of that Double Switch. I know that it will enhance his life, but the thought of what they actually do...it freaks me out. I don't think there is a way for a parent to prepare for the thought of a surgeon taking your child in his hands and restructuring his heart. It is just plain scary.
I will keep you posted....
