Did you know that 1 in 100 babies in the U.S. are born with a congenital heart defect? CHD's are the leading cause of infant death, and the #1 birth defect of live infants. The cause of most congenital heart defects are unknown, yet funding for research vastly lags behind childhood cancer and other genetic diseases.

Has your child been diagnosed with l-tga? I would love to talk with you. Please enjoy my blog and email me if you would like to join a network of parents of children with l-tga and other CHD's.




























Friday, November 12, 2010

Hmmmm....Makes Sense (From October 27)

So normally I would be a work right now, but instead I am home with the little kids.  Nicholas woke up at 3:15 a.m. vomiting dinner from the night before.  The funny thing is, is that Sienna actually slept the entire night and when Nicholas started stirring, I was very surprised that she hadn't woke me up like she has been at 1 a.m. for the last week straight.  So I guess we just can't catch a break here!  Needless to say, Nicholas threw up every 15 minutes or so for a couple of hours and here we are at home for the day.

It kind of gets me thinking...it makes a lot of sense that the docs at Stanford want him (and Sienna) to be home for three weeks before and after surgery so he isn't around any bugs that are making the rounds.  So we will have the little kids home from around Thanksgiving until after the New Year. 

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