Did you know that 1 in 100 babies in the U.S. are born with a congenital heart defect? CHD's are the leading cause of infant death, and the #1 birth defect of live infants. The cause of most congenital heart defects are unknown, yet funding for research vastly lags behind childhood cancer and other genetic diseases.

Has your child been diagnosed with l-tga? I would love to talk with you. Please enjoy my blog and email me if you would like to join a network of parents of children with l-tga and other CHD's.




























Thursday, January 6, 2011

Worry Wart

I should be in bed right now, but for whatever reason, I am not.  So I decided to update my blog! 

I started back to work this week, and it was good to be back.  I often feel like work is my "escape" and that it is what keeps me sane, so needless to say, it felt really good.  I had a moment of insanity, though, right before I left on Monday morning.  Nicholas woke up while I was getting ready and I decided that the area above his incision looked puffy, like it was really swollen.  I thought, OF ALL THE LUCK!  It swells up the day I go back to work!  So I called home later that morning to talk to Lorenzo and he said it looked fine, the same as before.  I asked to talk to my mom and she said it felt normal, like bone underneath, not fluid or something.  But I was still unsure, so I called our pediatric cardiologist and made an appointment for after I got off work.  I met Lorenzo and the kids there and the cardiologist was having the echo tech take an echo.  We came back into the exam room and the cardiologist (a different one than usual, Dr Wright is on vacation) said although he could see what I meant, it was completely normal and nothing to worry about.  WHEW!!  

I think the moral of this story is that mommies worry.  I want my little Nicholas to be healthy and I worry that I won't be able to protect him as I go back to work.  I need to remember that he needs to just be a kid and that I can't shield him from everything.  With that being said, it is easier said than done! 

We are three weeks post-op today and he continues to amaze me.  

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