Did you know that 1 in 100 babies in the U.S. are born with a congenital heart defect? CHD's are the leading cause of infant death, and the #1 birth defect of live infants. The cause of most congenital heart defects are unknown, yet funding for research vastly lags behind childhood cancer and other genetic diseases.

Has your child been diagnosed with l-tga? I would love to talk with you. Please enjoy my blog and email me if you would like to join a network of parents of children with l-tga and other CHD's.




























Monday, April 2, 2018

A Looonng day at BCH pre-op

We were at the hospital today from 7:30 am until about 6:45 pm. We had every test done known to man today, and we have the green light for Nicholas to have the Double Switch to "correct" his anatomy. We have to get him a bountiful dinner right away, because he cannot eat after midnight tonight, but I promise I will update the blog when we get back. 

 Thank you to all who have texted and sent messages today. Keep those prayers and good thoughts coming!
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