We are still in the Intermediate ICU; we had a chest x-ray this morning and they determined we could remove the chest tube. The team came shortly after and pulled it out. It didn't seem to bother him much, so it wasn't too big of a deal for him. They also repeated the echo this morning and they determined that the gradient on his Pulmonary Artery is right around 30mmHg. We started at around 22mmHg, so there is a little improvement, but not the kind of restriction that would really force his left ventricle to pump hard and train it to take over the systemic function down the road. We are waiting for Dr. Hanley to look at the information and make a recomendation. We are looking at two probable choices: 1: re-band before we leave, or 2: leave and allow Nicholas to grow into the band. This makes me feel really, really emotional.
Nicholas had a good day today. He got to go on a WALK! He looked like he wanted to run and jump, but thankfully we had a good hold of him and he didn't topple over or anything! He had a few exciting visitors today, too. Some firefighters came this morning and were handing out toys. Nicholas got a new fire truck that makes siren noises!
We also got to go to the "Forever Young Zone" and Nicholas got to meet two players from the San Francisco 49'ers! Nicholas received a Build-a-Bear from #40 Chris Maragos and he got his picture taken with #66 Eric Heitmann. What a neat thing for these guys to do! I think I saw a news camera from NBC, so it wouldn't surprise me if Nic is on the news tonight!
Bren,
ReplyDeleteIt is so nice to see a smile on Nic's face. Tell him that his Auntie Ny loves and misses him!
Love, Ny