Did you know that 1 in 100 babies in the U.S. are born with a congenital heart defect? CHD's are the leading cause of infant death, and the #1 birth defect of live infants. The cause of most congenital heart defects are unknown, yet funding for research vastly lags behind childhood cancer and other genetic diseases.

Has your child been diagnosed with l-tga? I would love to talk with you. Please enjoy my blog and email me if you would like to join a network of parents of children with l-tga and other CHD's.




























Saturday, December 18, 2010

Making Progress

Just a quick update....

Nicholas was able to have his beloved chocolate moo this morning, and the first thing he asked to eat was a chocolate donut and a chocolate muffin.  Glad to see him getting a little bit of his personality back!! 

He has definately not been able to understand what is happening to him.  He seems to be "comfortable", or rather not in pain.  But he seems to be very depressed and sad.  He cries on and off whenever he is awake.  He keeps continuously asking when we get to go home.  He is begging to talk to Sienna.  So Lorenzo pulled out some video on his phone of Sienna's birthday, and Sienna doing laundry, and Sienna goofing around in the leaves, and it seems to really perk him up. 

The docs came in for rounds this morning and they are very happy with his progress.  He will still spend one night and some of tomorrow in the CV-ICU if everything continues to improve as it has.  He will get his neck IV out tomorrow hopefully, because it seems to really bother him.  The main thing they are watching is a little bit of fluid in his right lung, but they seem to think he will resolve it without intervention. So the tenative plan is to stay in CV-ICU tonight and then transfer up to the recovery ward tomorrow. 

2 comments:

  1. Brenna, Zo, and Nick,
    We are thinking about you here in Spring Creek. Nick, I am so happy that you got to eat a chocolate donut. We miss and love you.
    Ny, Rich, Jake, and Aliyah

    ReplyDelete
  2. Nick, Nick did you like your chocolate muffin? I sure do miss and love you. I hope you get well soon!
    Love, Aliyah

    ReplyDelete